Carmela has a rare muscle wasting disease called LMNA Congenital Muscular Dystrophy which progressively weakens every skeletal muscle and the heart and lungs over time, shortening her life to late teens, if not before due to the heart and lung issues.
Along with her mum Lucy, Carmela visited Calvert Trust Exmoor in 2019. Lucy very kindly took the time to create their Guest Story…